November 3

Today was the port implant.  We’d been told to get to the hospital at 7:30 for a 7:45 appointment on the 4th floor.  We were (of course) a couple of minutes early, and nobody was around until about 8:00.  I had my book, my sweetie had his music, and we were pretty comfortable, but a little bored.

Eventually people started showing up.  I stripped above the waist and got into a gown.  Various people explained various parts of the procedure, which was fairly complicated.  The PA went over risks and got my consent.  They wheeled me into the room where they do the placement, and M left to do errands, figuring on coming back at 10:30.  So, they put a cap on me and took me into the procedure room, Eventually, they took my book and glasses and gave me a mask, and they started hooking up the IV connections, and then waited.  It seems that one of the machines they needed was in use.  They went to borrow one from a different section, and in the meantime the nurse figured I might as well have my book and my glasses back, so I wasn’t totally bored.  By the time they brought the borrowed machine in they had their own back.  So we didn’t start until I’d been lying there half an hour.  By now, I’d had an antibiotic drip, but they didn’t start the pain drugs until they were ready to go.

Then they took away the book and the glasses,  went over the affected areas a couple of times with disinfectants, put a sterile drape over me, and went to work.  They get into the vein in my neck and drop a catheter down to the vena cava.  Then (if I have the order right) they put in the port, stitch it down, test it in both directions, and either correct or call it a placement.  In my case they called it a placement.  Even with the delay it was just an hour after they’d wheeled me in that they wheeled me back.  M was there waiting for me.  He’d brought small bites of cheese.  They gave me cookies and cranberry juice.  (He got apple juice, too.)

And then we waited through two more blood pressures and they gave me a bunch of followup instructions (sex is not, apparently forbidden, but the nurse thought I probably shouldn’t).  We were free to go.

We stopped upstairs in the oncology unit to deliver stool samples necessary to qualify me for the protocol, but I learned that my clotting time was still outside the margin (although by less than before), so I won’t be doing it.  That means I don’t stand a chance of getting the second drug, but it also means that the amount of time I have to spend at the unit being poked and prodded will be considerably less.  You win some and you lose some.

We got home by about 11:30.  I was okay for a while, but then I lost the bits of food I’d eaten.  (There was morphine in the drip, they told me, so I’d been afraid that would happen.  I don’t like opiates.)  Now the drugs have worn off and, between the bandages that seem to be tying my head into a strange position and the wound, which isn’t horrible but it’s not nice either, I’m not comfortable.

6 thoughts on “November 3

  1. Fairly disappointed about you ending up outside the clotting margin, but as you say less poking and prodding, I guess. I’ve been browsing panix.chat.politics a bit lately and it still seems pretty reliably toxic, so maybe if they could find a way to administer it via saline drip… The nausea might be a bit much. I’m not even on chemo and it pretty much wears me out. Oh, and I think the anti-sex nurse should mind her own business.

    • Okay, I was exaggerating, but I mean… what’s the worst that could happen? I could see it if she added “for a few days…” or something. BUT it’s what you feel comfortable with that counts, not what I think. :)

    • I’ve been pretty well swamped with appointments this week, and I haven’t had much time or energy for anything else. Today I start the infusions, and I’m hopeful that I’ll get into a routine with some space in between the medical stuff.

  2. Oh, Mara, I’m just so sorry to hear about this. It really doesn’t matter if old friends don’t get to see each other often; the connection is always there. I miss you and remember so many good times growing up in Massena and all those special times with you and your family. My thoughts and prayers are with you.

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